Tuesday, May 13, 2008

Congenital Muscular Torticollis...

So... Where do I begin? Most of you know that we have had some health changes and challenges in our family over the past few months. Anthony has "Universal Alopecia", meaning he has lost most of the hair he used to have, including eyebrows and eyelashes. There are other things that have come up along these months, but the newest is one that is a bit more serious.

We took Dario to a pediatric visit last week. He had two ear infections that I needed to check on. When the doctor saw him, she got alarmed at something that he has had since he was born. You know how newborn babies do not have much head control at first and they kind of sqwunch down wherever they are? Well, I assumed that that is what his problem was over the first few months, but apparently I was wrong. His head still leans left with his chin pointing right. We were told that we needed to have him checked out IMMEDIATELY at an orthopedist at a local hospital who confirmed that he has "Congenital Muscular Torticollis".

According to this website, http://health.yahoo.com/musculoskeletal-overview/congenital-torticollis/healthwise--tp22216spec.html, "Torticollis, also known as "wryneck," is a condition in which your baby's head is tilted. The chin points to one shoulder, while the head tilts toward the opposite shoulder. Treatment is necessary to prevent your baby's face and skull from growing unevenly and to prevent limited motion of the head and neck...Congenital torticollis occurs when the neck muscle that runs up and toward the back of your baby's neck (sternocleidomastoid muscle) is shortened. This brings your baby's head down and to one side. This is known as congenital muscular torticollis.
Experts don't know what causes the shortened neck muscle. Some experts believe that the muscle may sometimes be stretched or torn during the baby's birth. The tear causes bleeding and swelling, and scar tissue replaces some of the muscle, making it shorter." In the long run, if this is not taken care of, it could effect everything from physical appearance, to eyesight, to spine (scoliosis could set in), and some other things.

Anyhow, Dario's case is not as bad as some I have read about, but it is still not a comfortable time for our family. We have an appointment on June 6th with a specialist at a hospital in Naples. We will find out then how things really are with him and what steps we need to take to help him. He could just need physical therapy, but he could also need a medical intervention. In any case, please help us to pray for peace, wisdom, and healing. We are tired with all the things that have been going on in our lives throughout the early months of this year. This is only a bit of it, but we know that God gives us our joy, our hope, our strength; we know that He promised to "never leave or forsake us", and we know that our family has been dedicated to the Lord and that He loves us far more than anyone ever could. So... we wait, and pray, and praise the One who is able to do far more than we could ever imagine.

Thank you...


  1. precious baby...thanks for sharing this...Lord may you wonderful hand of mercy and healing be over Dario. Lord only YOU can change the structure of his muscles to move in the direction they need to go so his head doesn't continue to go the way it is. We trust YOU ALMIGHTY GOD and know that YOU hear us when we pray. Be with Celita and Anthony as the learn to care for Dario and help with his physical therapy. YOU ARE A GREAT GOD!

  2. Celita...you know we will be praying for you. We love you all and will be praying for wisdom for the doctor's and peace for all of you!
    Love and kisses to all!
    Julie, Joe and girls

  3. Thank you for praying... and for loving us. we love you and miss you... i will be in touch as i know more...

  4. God bless Anthony and little Dario....Sal and I are thinking of you! Take care, and please keep us posted.

  5. I will keep you in my prayers. Your boy is a beautiful baby, by the way.


  6. Oh dear friend...we will be praying for you all....my heart cries out with yours I can only imagine what you are going through. Here is a hug over the many miles we are apart. our God is a great God who can do mighty things and His way and will is perfect...may you all find rest in that and knowing that He will equip you for whatever life brings.
    my heart cries for you
    praying for you.....

  7. We are praying for you Celita and Anthony that the Lord will give you peace and wisdom to endure these challenges. The Lord is able to heal! We love you!
    Ralph, Trish and our 4
    Jonathan, Evangelina, Timothy and Marisa

  8. Praying for your family and especially for baby Dario.

  9. Praise God that He is a GOOD God and a God of completion! The healing He will bring to both Anthony, Darius and anyone else in your family will be whole and complete. It's not too big for our awesome God and we dont believe for anything less - its been promised to us. So thank God that we will see His mighty miracle working power flowing through your lives and His name gloried through your testimonies of complete healing!
    Love you lots and lots,
    Danielle xx

  10. Oh of course--lots of prayers for you and your family. Of course!