Tuesday, May 13, 2008
Congenital Muscular Torticollis...
So... Where do I begin? Most of you know that we have had some health changes and challenges in our family over the past few months. Anthony has "Universal Alopecia", meaning he has lost most of the hair he used to have, including eyebrows and eyelashes. There are other things that have come up along these months, but the newest is one that is a bit more serious.
We took Dario to a pediatric visit last week. He had two ear infections that I needed to check on. When the doctor saw him, she got alarmed at something that he has had since he was born. You know how newborn babies do not have much head control at first and they kind of sqwunch down wherever they are? Well, I assumed that that is what his problem was over the first few months, but apparently I was wrong. His head still leans left with his chin pointing right. We were told that we needed to have him checked out IMMEDIATELY at an orthopedist at a local hospital who confirmed that he has "Congenital Muscular Torticollis".
According to this website, http://health.yahoo.com/musculoskeletal-overview/congenital-torticollis/healthwise--tp22216spec.html, "Torticollis, also known as "wryneck," is a condition in which your baby's head is tilted. The chin points to one shoulder, while the head tilts toward the opposite shoulder. Treatment is necessary to prevent your baby's face and skull from growing unevenly and to prevent limited motion of the head and neck...Congenital torticollis occurs when the neck muscle that runs up and toward the back of your baby's neck (sternocleidomastoid muscle) is shortened. This brings your baby's head down and to one side. This is known as congenital muscular torticollis.
Experts don't know what causes the shortened neck muscle. Some experts believe that the muscle may sometimes be stretched or torn during the baby's birth. The tear causes bleeding and swelling, and scar tissue replaces some of the muscle, making it shorter." In the long run, if this is not taken care of, it could effect everything from physical appearance, to eyesight, to spine (scoliosis could set in), and some other things.
Anyhow, Dario's case is not as bad as some I have read about, but it is still not a comfortable time for our family. We have an appointment on June 6th with a specialist at a hospital in Naples. We will find out then how things really are with him and what steps we need to take to help him. He could just need physical therapy, but he could also need a medical intervention. In any case, please help us to pray for peace, wisdom, and healing. We are tired with all the things that have been going on in our lives throughout the early months of this year. This is only a bit of it, but we know that God gives us our joy, our hope, our strength; we know that He promised to "never leave or forsake us", and we know that our family has been dedicated to the Lord and that He loves us far more than anyone ever could. So... we wait, and pray, and praise the One who is able to do far more than we could ever imagine.